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Living With Muscular Dystrophy

By: Deanna Bettineschi Email
By: Deanna Bettineschi Email

“Don’t ask why, ask why not don’t take the easy way out and feel sorry for yourself because that’s not life for anybody.” Bogardus said.

29 year old Blake Boagardus says for as long as he can remember, he's been disabled.
And for many 29 year olds, getting to that age has no significance, but for Blake, it's a milestone.

At just a few months old, Bogardus was the kind of baby every mother wanted.

“My mom she would put me to bed at night and she would wake up the next morning and be like he didnt move at all. He's a perfect baby.” Blake Bogardus said.

But as the months passed, his mother started noticing something wasn't right.

“I wasn’t crawling the way they thought I would.” Bogardus said.

His mother took him to the doctors where they did a muscle biopsy.

That’s when they found I had muscular dystrophy.” Bogardus said.

A diagnosis that put his life on a time limit.
Doctors said Blake wouldn't live past his third birthday.

“Then my three year old birthday came and he said well it doesn’t seem to be as severe in him as we noticed it before, so maybe 7 to ten.” Bogardus said.

This is just the first of many times Blake would shock the doctors, living past each deadline.

“Then ten came, and by that point I don’t even act like I’m in a wheelchair, I’d go outside and play baseball, football.” Bogardus said.

It wasn't until he was a teenager Blake started showing more severe signs of muscular dystrophy.

“My left lung was not moving any air.” Bogardus said.

He chose surgery to correct the problem.

“I ended up doing the surgery and ended up coming off the ventilator within seven hours, which was a few days faster than he thought it would be.” Bogardus said.

Then...came another setback.

“Once I lost the ability to feed myself and do some of those independent activities, I took it kind of hard and started playing more video games.” Bogardus said.

A video game led him to meet his wife Katie.
After three years of talking online, the couple finally met.

“After convincing my family I wasn’t letting a serial killer come, she came and stayed for two weeks. She was here to see if she could handle the disability.” Bogardus said.

“I had known him for a long time, years of knowing each other. I had already fallen in love by that point.” Blake’s wife, Katie Bogardus said.

Since that moment, the two have been inseparable, taking on each challenge together.

“I kind of forgot he was in a wheelchair I guess, I still think it’s like he’s not in a wheel chair, it’s like he's sitting down a lot. “ Katie said.

As each day passes and Blake continues to beat the odds, he wants to remind anyone with a disability...

“Don’t ask why, ask why not don’t take the easy way out and feel sorry for yourself because that’s not life for anybody.” Bogardus said.

Blake says he'll keep focusing on what he can do.
He's started a fundraiser to help him and his wife get a new suv that would cater to his disabilities.

If you'd like to help the Bogardus family with this goal,
Just head on over to wtvy.com and click on the for more info link.
Here you can find their website and where you can send donations.


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