Support for people on dialysis and their loved ones

Where can I talk to other people on hemodialysis?
You can join an email list to talk to other patients on hemodialysis. An email list means that when any member sends an email, everyone who is subscribed to the group receives it. (This can mean getting a lot of email). To get to the Dialysis Support group, go to: http://www.yahoogroups.com. Type: dialysis_support into the "search" box. Click on the link, then click the "Join this group" button.

Where can I talk to other people on PD?
Because peritoneal dialysis is a type of home dialysis, you will not see fellow PD patients in person on a regular basis the way people who go to in-center hemodialysis do. To talk to other patients on PD, you can join an email list. An email list means that when any member sends an email, everyone who is subscribed to the group receives it. (This can mean getting a lot of email). To subscribe to the CAPD-CCPD support group, go to: http://www.yahoogroups.com. Type: CAPD-CCPD into the "search" box. Click on the link, then click the "Join this group" button. You can also go to the DaVita.com Discussion Forum at http://www.davita.com/bbs/index.php where there is a section for home dialysis.

Someone I care about needs dialysis but does not want it. What can I do?
Ask why they don't want dialysis. People often believe they will have a poor quality of life "on a machine." If many other illnesses are present, this may be true. Others find that with a trial period of dialysis for a month or two, they feel much better and can have a full and active life. Only the person who needs dialysis can decide what's right for him or her, but it may help you both to talk to other people who are living with dialysis. Perhaps their doctor could help you arrange this.

What happens if I stop doing dialysis?
How long someone with kidney failure will live when they stop dialysis varies, but it's often a few weeks or less. Death is usually painless, and medications can be given to ease the process. Hospice care, if it is available, can help you and your family through the process. The National Kidney Foundation has an excellent booklet called "Dialysis: Deciding to Stop," you can read online by clicking at: http://www.kidney.org/atoz/atozItem.cfm?id=40


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