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Corrective Surgeries help Young Girl with Disfigurement Disease

By: Bethany Anderson Email
By: Bethany Anderson Email


"She makes noises now, she can feed herself now and as a mother, that's very rewarding."

(Paxton, Fl)--After undergoing several surgeries earlier this year,
4-year-old Katie Renfroe is making big strides.

She has a rare disfigurement disease called megalencephaly and was born with an extremely large head, tongue and cheeks.

In May, doctors performed another surgery on Katie to reduce her tongue, so she could speak. Her mother. Angie Renfroe, said her progress is encouraging.

"She makes noises now, she can feed herself now and as a mother, that's very rewarding," Renfroe said.

Katie used to weigh 48 pounds but the majority of that weight was in her head. Katie's mother said she's now starting to put weight on her small frame and hopes upcoming surgeries will only make her stronger.

"I believe the more she gets stronger, the more weight she gains, the
better she can control her body."

Katie's journey is far from over, she still needs seven more surgeries.
Her parents live on a $700 fixed income, they have 8 children and
have a hard time paying for trips to the doctor.

"We have to worry about gas, will our car even make it to her doctor in
South Florida? How long will we have to stay in a hotel? Can we afford
it?" I hate to ask for help but my husband is disabled. " She said.
Katie requires constant attention and hospital trips, I want to be here
for my daughter and all of my children but a job isn't really feasible
for my situation," she said.

If you would like to help Katie's family, an account has been set up at
regions bank in the name of Angie Renfroe for the benefit of Katie
Renfroe. Catholic charities is also working with the family.

FOR MORE INFORMATION:

How to Help Katie:

Checks can be made out to Angie Renfroe & sent to:

Kelly Humphrey
Catholic Charities
11 1st Street Southeast
Ft. Walton Beach, FL 32548

Or contact Regions Bank:
Tel: (800) 734-4667


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